We want to invite young people (13 to 18 years old) with Inflammatory Bowel Disease (IBD) and parents of young people with IBD to participate in workshops to provide feedback on a new intervention to support young people with IBD to adhere to their treatment plan. The feedback from these workshops will be used to improve the intervention.
What we’ve done so far
We conducted interviews with young people (ages 13 to 18) with IBD and parents of young people with IBD to understand why young people cannot join the IBD treatment plan; and find out what kind of support would help young people to live well with IBD.
We found out about:
- Since IBD affects a young person’s life and beliefs about the disease and its treatment,
- Things that hinder adherence, and
- Beliefs about the most effective strategies to support medication – take your opinions on useful and engaging ways to provide support.
Existing research has also been revised to identify programs that have been developed elsewhere.
What we are planning to do next
1. Development of an intervention
The information we discovered in our previous research projects has been combined to identify how we can best support young people to adhere to their treatment plan. This will then be used to assist researchers in development of an intervention, specifically adapted to the needs of young people (13 to 18 years old) with IBD, to improve their treatment adherence behaviors. Such treatment behaviors include taking medications and following lifestyle advice.
2. Feedback workshops
Following the initial development of the intervention, we intend to invite young people with IBD and parents of young people with IBD, to separate workshops. In these workshops, the research team will introduce young people and parents to the intervention, before asking workshop participants to provide feedback on it.
We will accept all comments, including opinions on the content intervention, as well as how we plan to deliver intervention for young people. The workshops are likely to last about one hour. We will also use creative methods (such as gluing or using Lego) in the workshops to help young people and parents provide feedback and generate ideas.
The ideas and feedback provided by young people and parents in these workshops will be used to further develop the intervention to ensure that it is appropriate for young people, aged 13-18 years, with IBD.
Can you help us to make our workshops engaging and fun?
By Miss Cassandra Screti, Aston University